Caregiving Organizations
Organizations like these can provide you with a lot of good information. But don’t forget to get to know your local organizations and senior centers. Their help can be invaluable.
There is a magazine and website with current information and resources for caregivers. This is a good site to take a look at.
A really great resource center for Caregivers. While on the site I read an article signaling new trends in healthcare. There is a fairly new program called Hospital at Home. It has a number of similarities to Hospice (at least for the caregiver). Caregiving for someone who needs hospital level care is hard, especially for family caregivers who won’t necessarily have a medical background. It is 24/7 care, and it can be exhausting. It might also be nerve-wracking for someone who now has to handle medical issues and drugs they may be unfamiliar with.
What the program needs is a way to fast train caregivers, before a patient comes home from the hospital. They need to understand the new task they are undertaking. And they need to be sure they can handle it or can put a team together that can handle it.
On the plus side, patients feel so much better when they can be in their own homes. They relax. They heal faster. It ends the sense of isolation that can occur during hospital stays. It is an all-round better situation for patients.
This website has its beginnings in Texas. It lists events, has resources for caregivers, hosts articles and news, and has information on support groups.
Their education section has topics full of information for caregivers.
Caregiver
Action Network
1150 Connecticut Ave, NW
Suite 501
Washington,
DC 20036-3904
Caregiver
Help Desk: (855) 227-3640
Office Phone: (202)
454-3970
E-mail: info@caregiveraction.org
Provides some resources and has a facebook group. One of their pages is listed as their toolbox. Here you can find a lot of information on family caregiving. This page has the capacity to be a great resource for family caregivers whether you are starting out or you have been a caregiver for a while.
Is also the National Center on Caregiving. They started out in San Francisco. Their services include a focus on specific diseases like Parkinson’s, strokes and other diseases affecting cognitive behavior.
They also offer plenty of resources and services to help caregivers.
National Family Caregivers Association
This site by groups in Sonoma County created this site in 2004. Today it is still maintained and has a great deal of resources available for caregivers.
CICOA Aging & In-Home Solutions
CICOA is out of Indiana. Their resources are good ones.
National Institute on Aging - Caregiving Resources
The site has a lot of information related to Alzheimer’s and other types of Dementias. But they also have resources for caregivers and those researching Long Covid and other Covid 19 related issues.
To get to the resources page from the home page I entered caregiver resources into the search box located near the top of the page.
National Family Caregiver Support Program
This grant-based program has existed since 2000. The NFCSP gives grants to states and territories that are used to support the needs of family caregivers. Individuals typically get help through state and local agencies.
Their website also has a resources section for caregivers.
National Volunteer Caregiving Network
This organization operates out of Ventura California but helps people find volunteers in your local area.
The Robert Wood Johnson Foundation and its Faith in Action program funded the original Volunteer Caregiving program beginning in 1984. There may or may not be a program available near you, but it never hurts to check. They can free up caregivers for a certain amount of time, giving them a chance to recharge.
National Association of Area Agencies on Aging
This information and resources site comes from information created by the American Geriatrics Society Foundation. There is a lot of good information available.
National Respite Network and Resource Center
Arch Respite helps caregivers select respite care. They have a free downloadable ebook that explains the different types of respite care and what respite care is.
Important: It also has a list of programs that will help caregivers get paid.
Hospice foundation focuses on dying, death, and grief. They have many resources should your family situation come to this point. They discuss hospice care, offer resources, and explain what hospice care is.
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